Objective To gain insight into the experience of disease communication among couples with stroke. Methods A descriptive phenomenological approach was conducted and a purposive sampling method was used to select 19 couples with stroke from August 2022 to March 2023 in the Department of Neurology of a tertiary hospital in Henan Province for semi-structured interviews. Data were analyzed by the Colaizzi method. Results A total of 2 themes and 8 sub-themes were extracted. Constructive disease communication included open communication of treatment information，timely communication of changes in symptoms，active communication of secondary prevention，and proactive communication of negative emotions. Negative disease communication included avoidance of communication，communication conflict，ineffective communication，and communication concealment. Conclusion Couples with stroke experienced both constructive and negative disease communication. Healthcare professionals should develop targeted interventions to improve disease communication，enhance the ability of couples to make decisions together，and reduce their negative emotions.
Objective To systematically evaluate the medication experience of patients with chronic multimorbidities and to provide a reference for developing precise intervention programs to improve the medication experience of patients with chronic multimorbidities. Methods PubMed，Cochrane Library，Web of Science，Embase，CINAHL，PsycINFO，CNKI，Wanfang database，VIP database，and Chinese biomedical literature database were searched from the year of database establishment to October 2022，and qualitative studies on medication experiences of patients with chronic multimorbidities were retrieved. The Joanna Briggs Institute Critical Appraisal Tool for qualitative research（2016） in Australia was used to evaluate quality of the studies. A meta-synthesis method was used to integrate the results. Results A total of 11 articles were included，and 56 research results were extracted and integrated into 12 new categories，which were summarized into 4 integrated results：poor sensory experience of drugs，negative emotional and related experiences，reflective and behavioral experiences，and multi-dimensional debugging to improve medication experience. Conclusion The medication experience of patients with chronic multimorbidities should receive extensive attention from society and medical workers，and future research should be conducted to improve the level of patients’ medication experience in 5 dimensions，including sensory experience，emotional experience，reflective experience，behavioral experience and associative experience，so as to provide a basis for further improving the medication experience of patients with chronic multimorbidities in China.
There are problems of disease communication between couples with cancer. The spousal disease communication interventions play an important role in improving disease communication ability，intimacy and negative emotions in spouses with cancer. This paper reviewed the current status，influencing factors，interventions and effects of disease communication in couples with cancer. This paper aims to provide a reference for developing an intervention for disease communication in spouses with cancer.
Illness perception affects the self-management behavior of patients with chronic diseases，and is closely related to the occurrence and development of diseases，patients’ mental health，quality of life，and health outcomes. This paper reviews the content，characteristics，application and limitations of illness perception assessment tools for patients with chronic diseases at home and abroad. It can provide a reference for the development and application of illness perception assessment tools for patients with various chronic diseases in China，and provide a basis for scientific assessment of illness perception levels and formulation of targeted interventions.
This article reviews the composition of a risk communication team,nurse-led risk communication strategies and communication process for high-risk groups of cardiovascular disease in foreign countries,in order to provide references for nurses to carry out theoretical research and practical work of risk communication for these groups in China.
Objective To develop and test the reliability and validity of the Behavioral Decision-making Scale for stroke patients. Methods The conceptual structure was defined based on theory analysis. The literature review and semi-structured interview were conducted to build the items pool. The initial scale was formed after expert consultations;the cognitive interview was conducted to test and adjust the items. Then,327 stroke patients were conveniently investigated from February to October 2020,and the data was used to test the reliability and validity of the scale. Results The scale consisted of 30 items,4 dimensions,with a cumulative variance contribution of 64.408%. The 4 dimensions were named as “behavioral change motivation”,“behavioral change intention”,“decision factors”,and “decision balance”. The content validity index of the total scale was 0.800-1.000;the Cronbach’s alpha coefficient was 0.934,the half reliability was 0.797,and the 2-week retest reliability was 0.833. Conclusion The Behavior Decision-making Scale has good reliability and validity,and it can be used as a valid tool to assess health behavior decision making in stroke patients.
Objective To systematically evaluate the qualitative research about experience of patients and caregivers on self-care,so as to provide references for better developing and improving stroke self-care intervention programs and promoting physical and mental health of stroke survivors and caregivers. Methods PubMed,Web of Science,Embase,PsycINFO,CINAHL,Cochrane Library,Joanna Briggs Institute（JBI）,CNKI,Wanfang database and other Chinese and English databases were searched by computer to screen qualitative studies related to stroke survivors / caregivers and self-care. The retrieval time was from the establishment of the databases to June 2021. Joanna Briggs Institute evidence-based health care center quality evaluation tool was used to evaluate the methodological quality of the included literature,and the results were integrated by meta-integration method. Results A total of 12 studies were included,and 46 clear research results were extracted. The similar research results were summarized into 11 new categories,and 3 integrated results were synthesized：understanding of the concept,significance and influencing factors of self-care by stroke survivors and caregivers;perceptions of stroke survivors and caregivers on skills and strategies related to self-care;views of stroke survivors and caregivers on the acceptability and sustainability of self-care support. Conclusion Views and expectations of stroke survivors and caregivers on self-care are important. In the future,dyadic self-care support programs for stroke survivors and caregivers can be carried out,and the advantages of digital technology and platforms can be used to enrich the forms and contents of self-care interventions and form more targeted self-care interventions.
Objective To systematically review qualitative studies on the experience of telerehabilitation for stroke survivors,so as to provide references for clinical practice in China. Methods We searched databases including PubMed,Web of Science,PsycINFO,CINAHL,Cochrane Library,JBI,Scopus,CNKI,CBM,and WanFang Data from inception to June 2020,to collect qualitative studies related to telerehabilitation of stroke survivors. The quality of included studies was evaluated according to JBI Critical Appraisal Tool for qualitative studies in Australia. Meta-synthesis was used to integrate results. Results A total of 13 studies were included to extract 43 research results,and 4 synthesized findings were grouped from 13 categories according to their similarities,including the use attitude of stroke survivors to information and communications technology equipment;the perceived benefits of stroke survivors towards telerehabilitation;the perceived obstacles of stroke survivors towards telerehabilitation;the long-term telerehabilitation needs of stroke survivors. Conclusion As an alternative way of traditional rehabilitation,stroke telerehabilitation is affirmed with its effects by most stroke survivors. But in the future,we should pay attention to strengthen the telerehabilitation equipment and technical support,to build the whole-process peer support system of stroke telerehabilitation,and to enrich the content and form of telerehabilitation for stroke survivors to further improve its acceptance.
Objective To develop an instrument for measuring recurrence risk perception of stroke patients and to test its reliability and validity. Methods The research was completed under the guidance of Health Belief Model and Risk Perception Attitude Framework. The initial measurement was developed after literature review and qualitative interviews. The items were formed and adjusted after Delphi technique and cognitive reviews. 327 stroke patients were conveniently selected and investigated to test the reliability and validity of the scale. Results The stroke recurrence risk perception scale included 2 parts：the first part was consisted of 3 items,and the second part was consisted of 3 domains and 17 items with the accumulated variance contribution rate of 61.103%. The content validity index of the scale ranged from 0.926 to 0.954. The Cronbach’s α coefficient of the second part was 0.850;the split-half reliability was 0.656;the two-week test-retest reliability was 0.710,and the one-month test-retest reliability was 0.635. Conclusion The stroke recurrence risk perception scale has good reliability and validity,which is a suitable tool for the evaluation of recurrence risk perception of stroke patients.
Objective To gain insights into the perception of the disease experience and recurrence risk from the perspective of patients who experienced first-ever and recurrent stroke. Methods A phenomenological approach was conducted and a total of 19 stroke survivors were enrolled for semi-structural in-depth interviews. Colaizzi method was used to analyze the data. Results The abstraction process generated 3 categories according to the number of recurrences,which showed different characteristics. First-ever stroke survivors could identify anomalies but lacked of professional information resources;they could actively seek treatment with awareness of benefits of timely hospitalization;they were overoptimistic towards prognosis and easily overlooked the risk of recurrence. For the patients with a second stroke,adequate information about warning signs was still needed;they perceived the severity of recurrent stroke and aroused self-reproach and self-examination;susceptibility of recurrence,sense of powerlessness and the loss of control were experienced. Regarding to patients with multiple recurrences,their social participation ability significantly decreased;they perceived no visible benefits of behavioral changes;they started to focus on life and death with positive or negative acceptance of recurrence. Conclusion Despite differences of patients,inadequate awareness of recurrence risks is a common phenomenon. It is recommended to develop a classified health guidance according to patients’ recurrence times,to implement risk communication education to promote disease awareness and recurrent risk perception of stroke survivors.
Objective To systematically review the illness experience of patients with post-stroke urinary incontinence（PSUI） and provide references for healthcare workers to carry out precision nursing intervention. Methods We searched databases including the Cochrane Library,PubMed,EMbase,CINAHL,Web of Science,PsyINFO,CBM,CNKI and Wanfang from inception to May 2019 to collect qualitative studies on the illness experience of PSUI patients. The quality of included studies was evaluated by JBI Critical Appraisal Tool for qualitative studies. Results A total of 5 studies were included,with 34 complete research findings grouped into 7 categories by their similarities. Two integrated findings were synthesized：patients with PSUI can have severe negative emotion and interpersonal tension with limited daily activities;patients with PSUI have poor self-management due to communication barriers and lack of information,therefore,they are longing for family and social support. Conclusion Healthcare professionals should pay more attention to the illness experience and information needs of patients with PSUI,and provide psychological counseling,medical support and humanistic care,in order to help patients to improve their confidence in coping with the disease and improve theirquality of life.
Objective To systematically review and synthesize qualitative studies on the effects of environmental factors on functional activities and social participation of patients with stroke at home,in order to provide evidence for community health workers to improve home environment of stroke patients and to enhance their functional activities and social participation. Methods We searched databases including PubMed,Embase,Web of Science,PsycINFO,CINAHL,CBM and CNKI from inception to January 2019,to collect qualitative studies exploring environmental factors affecting stroke patients’ activities and participation. The quality of included studies was evaluated according to JBI Critical Appraisal Tool for qualitative studies in Australia. Meta-synthesis was used to integrate results. Results A total of 12 studies were included,and 34 findings were grouped according to their similarities to form 9 categories. Integration results 1:obstacles in living environment directly restricted patients’ activities and social participation;integration results 2:social support was crucial;integration results 3:the existing transportation services and health care services were difficult to meet patients’ needs. Conclusion Barrier-free environment plays an important role in the rehabilitation process of stroke patients at home. Government,community medical and health institutions and other relevant personnel should pay full attention to the impact of environmental factors on stroke patients at home,and help them establish a good social support network. Community health care services should be improved,and supportive organizations for stroke patients should be established to meet the needs of stroke patients at home.
